I am a 41 year old adult with intractable epilepsy. 

I have most of my seizures while I am sleeping.  I sleep through some and am awakened by others, depending on the severity of the seizure.  I have anywhere between 8 to 15 seizures a night - 7 nights a week - 365 days a year.  It was diagnosed that I had cortical dysplasia.  This is a congenital (present at birth) abnormality in the brain’s development.   I had my first seizure when I was 3 years old.  They would be frequent, and at any time of the day or night. 

I have had 3 major brain surgeries called “focal resections.”  The last surgery really had an effect on my short-term memory and my speech.  None of the brain surgeries worked.  I also had extensive testing in Chicago.  There was nothing more they could do for me.  I then had the vagus nerve stimulator implanted.  I tried it for 3 years with no results.

As far as medications go, I have tried, probably, 30 to 40 different anti-convulsant medications in my lifetime.  I am now on 4 different medications at their maximum dose.  Needless to say, I feel totally drained and lethargic 24 hours a day, especially in the morning.  I don’t want to think of what affect it is having on my body.

I have a 6 year old daughter.  She is the light of my life.  I am very limited on jobs that I can do, due to the learning disabilities and the speech problems. At the present time, I am unemployed. My desire is to be able to provide for my daughter and me. I have a passion for working out and living a healthy lifestyle.  More than anything, I would love to be a personal trainer.  However, due to my learning disabilities and number of seizures at night, I have not been able to pass the test for getting my license.  I am at the end of the road for any improvement.  I feel that my personality has changed with each surgery.  I am quieter and lack self-confidence.

The cannabis oil is my ONLY HOPE! The best part is that there are no side effects and the results have been amazing.  I could possibly have more energy and get seizure relief.  It would be a total new life for my daughter and I.

 

Compassionate Access for Epilepsy (CAFE) is a project of the Epilepsy Foundation Texas affiliates.  CAFE Texas brings together Texans and nonprofit organizations that support the therapeutic use of cannabidiol (CBD), a non-psychoactive component of cannabis, to treat epilepsy.